Help filling out Prescription Assistance Program Applications, Assistance with Medical Transportation Costs, Connect with Retreats, Camps & Recreational Programs, Patient Assistance Program Update Service (PAPUS), Diagnosis Assistance Program Update Service (DAPUS), Patient Assistance Program Administration, Alexander Graham Bell Association for the Deaf and Hard of Hearing, American Association for the Advancement of Science (AAAS), American Association of People with Disabilities (AAPD), American Association on Health and Disability (AAHD), American Council of the Blind, Inc. - National Office (ACB), American Speech-Language-Hearing Foundation (ASLHF), Association for Education and Rehabilitation (AER) of the Blind and Visually Impaired, California Association for Postsecondary Education and Disability (CAPED), Camp Sertoma for Deaf and Hard of Hearing Children, Candlelighters of West Texas and Southern New Mexico, Children's Hemiplegia & Stroke Association (CHASA), Citizens United for Research in Epilepsy (CURE), Council of Citizens with Low Vision International, Cystic Fibrosis Lifestyle Foundation (CFLF), Cystic Fibrosis Scholarship Foundation (CFSF), Daughters of the American Revolution (DAR), Department of Military and Veterans Affairs, Diabetes Scholars Foundation - Beyond Type 1, From Tragedy to Triumph Foundation (FTTTF), Gallaudet University Alumni Association (GUAA), Georgia State Univeristy Disability Services, International Association of Fire Fighters (IAFF), International Essential Tremor Foundation (IETF), Jean Kennedy Smith Arts and Disability Program. Program awards scholarships to those whose lives have been altered due to injury while serving in the United States Armed Forces. Program offers scholarships for individuals with disabilities for the purpose of paying academic expenses for an aviation career. Program awards a scholarship to a blind or visually impaired female undergraduate student studying music. Website: bionews.com Program provides scholarships to members of LPA who have a medically diagnosed form of dwarfism, immediate family members of dwarfs who are also paid members of LPA and people with dwarfism who are not members of LPA. A scholarship for students with disabilities or injuries in need to financial assistance for educational purposes. | However, we can't guarantee the accuracy or completeness of the information. Program awards two educational scholarships to students diagnosed with a bleeding disorder. Two $500 Chinn Scholarships for LGBTQ Atheist Activism that recognize atheist activism in the area of LGBTQ equality. Pensacola, FL 32502 There are 365 scholarship(s) in National. An educational scholarship for a student or whose loved one is diagnosed with epilepsy or another seizure disorder. Program awards a scholarship to individuals relying on HPN, HEN, or HPEN for their primary nutritional needs, to further their educational goals. Program provides scholarships to students who are legally blind and striving to obtain a college education. Program provides financial assistance to children with a physical or psychological disabilities, or in the autism spectrum to help with child-canine services. Program awards scholarships for students with or impacted by a loved one with mesothelioma pursuing higher education at a four-year college or university. Program provides a $1000 educational scholarship for individuals who have been diagnosed with Autism Spectrum Disorder (ASD/Autism). webmaster. A scholarship to help with finances needed to attend any of the Adaptive Sports Center programs. Program provides scholarships to high school seniors diagnosed with hemophilia A or B. Research & Scholarship Overview; Patient Care Research. Program awards scholarship to select undergraduate students who have experienced the devastating loss of a parent or caregiver to suicide. Contact NeedyMeds if you find any content errors. Gastrointestinal Disorders, Cancers, Chronic, Serious or Life Threatening Illnesses. Scholarships awarded every year to college bound high school seniors with superior academic and extracurricular achievements who suffer from a chronic disease or other serious challenge to physical or mental health. Program provides scholarships for college students with a major limb amputation, who will be attending an accredited university as a full time student. Program offers scholarships to college students affected by gastro-esophageal cancers in their families. Hemophilia - Inhibitors, Hemophilia, Blood Disorders, Von Willebrand Disease. Must demonstrate a commitment to furthering LGBTQ+ visibility, diversity, and inclusion in the biosciences. Provides scholarships to high school seniors living with a chronic disorder and continuing their education at a college or university. Hemophilia, Hemophilia - Inhibitors, Congenital Factor XIII Deficiency. . Program provides up to 3 scholarships towards college education to siblings of childhood cancer survivors. RAREis and the HORIZON logo are trademarks owned by or licensed to Horizon. Program awards scholarships for LGBTQ high school seniors who are actively and substantially involved in community service. Program offers a scholarship to a person diagnosed with Common variable immune deficiency, selective IgA deficiancy or Familial Agammaglobulinemia pursuing higher education. Provides a limited number of scholarships for community members, veterans and caregivers living with limb loss and limb difference to attend the Amputee Coalition National Conference. Physical Disability, Spina Bifida, Chronic, Serious or Life Threatening Illnesses, Spinal Cord Injuries, Urostomy, Transverse Myelitis, Ileostomy, Neurogenic Bladder, Colostomy. National - (Preference will be given to MO and IL applicants). Cancers, Ewing's Sarcoma, Childhood Cancer. You are now leaving the #RAREis Community website. An educational scholarship for an individual diagnosed with Autism Spectrum Disorder who intends to further his or her education at a college, junior college or vocational/trade school. Scholarship awarded to student seeking higher education who have been affected by cancer, either by their own diagnosis or that of a loved one. We outline how this translation between rare and common disease vocabularies can be tailored to fit different applications. This scholarship is for young women pursuing a STEM major. Provides a summer camp scholarships to children affected by epilepsy and in financial need. A scholarship for girls diagnosed with turner syndrome to take part in activities such as camps, pottery lessons, music, or gymnastic classes. How it works Scholarship award for any current or soon-to-be under grad who has had their life altered due to a bodily injury, be it their own injury, that of a loved one, or an influential individual. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Program provides financial assistance for dependents of victims, or those involved in rescue efforts in terrorist attacks in the 9/11, pursuing post secondary education. Program awards scholarships to individuals who have been diagnosed with cancer, or a critical/life threatening disease/illness and are pursuing their higher education. The health information contained herein is provided for educational purposes only and is not intended to replace discussions with a health care provider. Program offers scholarships to adults with ASD who want to pursue a post-secondary education. Preference is given to students with a documented serious medical disability. She began her career at United Press International, then spent a decade reporting for the Bureau of National Affairs, Inc. (now Bloomberg Industry Group). Provides educational scholarships to young adults with who are cancer survivor or current patients, and are pursuing their education. Program awards scholarships for students affected by epilepsy and other seizure disorders pursuing higher education. Program offers scholarships to young adults who have lost a parent or guardian to cancer, pursuing higher education. Program provides scholarship to an individual living with vision loss or blindness attending graduate school. Inclusion on this list does not serve as official recognition by the NIH that a disease is rare. Website: bionews.com Provides academic scholarships to assist students diagnosed with Cystic Fibrosis pursuing undergraduate or graduate degrees. The application deadline is Aug. 28 at 3 p.m. CDT. Program offers scholarship to an individual with Down syndrome pursuing their dream of entrepreneurship. Scholarship offered to an individual or a close family member of an individual who has autism. August 10, 2020. Program provides educational scholarships to disabled adults pursuing a career or vocation in any artistic field. Program provides a $1500 scholarship to a college student diagnosed with hemophilia or other bleeding disorders. Military related, Military wounded, Disabled - Veteran. Learning Disability, Dyslexia, Speech and language Delays or Impairments. Provides a scholarship to a high school, undergraduate or graduate student who has cerebral palsy. An educational scholarship for undergraduate students attending college/university in the US/Canada with dyslexia and/or auditory processing order. Among the many new orphan treatments in 2020, several are particularly noteworthy, including a new drug to treat certain people with Hutchinson-Gilford Progeria Syndrome and . National Hemophilia Foundation - Novo Nordisk, Inc. National Hemophilia Foundation - The Coalition for Hemophilia B, National Organization of Lesbian and Gay Scientists (NOLGS), Paralyzed Veterans of America Headquarters, Rexanna's Foundation for Fighting Lung Cancer, Shaundrika Taylor Cancer Foundation, Inc. (STCF), Sickle Cell Thalassemia Patients Network (SCTPN) - Brooklyn, Susan Satriano Memorial Scholarship Foundation, Teen with a Dream - A Pediatric Cancer Foundation, The Colburn-Keenan Foundation, Inc. (CKF), The SamFund - Support for Young Adult Cancer Survivors, The Susanna and Lucy DeLaurentis Charitable Foundation, Transplant Recipients International Organization, Inc. (TRIO), Turner Syndrome Society of the United States, United States Association of Blind Athletes, United States Association of Blind Athletes (USABA), University of North Texas (UNT) - Eagle Student Services Center, University of Wisconsin Madison Office for Students with Disabilities, Veterans United Home Loans - Veterans United Foundation, Women's Independence Scholarship Program, Inc. (WISP). This scholarship is for students pursuing a STEM major. Scholarships awarded annually to one male and one female athlete. $2,500 fund to a student with a summer internship in a nonprofit organization that supports direct legal services and/or projects on issues of concern to individuals with HIV or AIDS, anywhere in the country. Deafness, Hearing Loss, Hearing or Ear Conditions. Mary Chapman If you receive a scholarship award, you must notify NORD that you are accepting your award by Monday, August 17, 2020 at 11:59 . Von Willebrand Disease or rare factor deficiencies pursuing higher education. Program provides 9 Scholarships of up to $10,000 awarded to individuals with a dermatologic conditions seeking higher education. Provides awards to individuals with Down syndrome ages 18 or older, who brings public awareness to their community. Mary has written extensively for The New York Times, and her work has appeared in publications such as Time, Newsweek, Fortune, and the Chicago Tribune. NORD Leads the Way: 900+ Influential Rare Disease Stakeholders from FDA, Patient Organizations, and Industry Gather for #NORDSummit 2023 . College scholarship awards for oncology patient or survivor 23 years old or younger who has been registered as a Sunshine Kid for at least 3 months and participated in their programs. Lyme Disease, Chronic, Serious or Life Threatening Illnesses. If you're living in the U.S. with a rare disease and age 17 or older, this scholarship could help you pursue your learning goals. Provides over $20,000 in scholarships for camps to families affected by diabetes. NeedyMeds, a registered 501(c)(3) national nonprofit (#46-3091990), makes every effort to ensure the accuracy of the information on the website. Scholarships for a current paid member of TSSUS to attend the 3-day National Turner Syndrome Conference held each summer in different cities across the United States. Program offers need-based scholarships and educational experiences to high achieving cancer survivors pursuing a music related field of study. The following are scholarships that students with various medical issues can apply for to help them defray the cost of their degrees. Kidney and Urology Foundation of America, Inc. Lupus Foundation of America Florida Chapter, Lupus Inspiration Foundation for Excellence (L.I.F.E. Program awards educational scholarships to support students who live with the ongoing challenges and complexities of hydrocephalus pursue higher education. Program provides a scholarship to a student of any age diagnosed with hemophilia B, and are pursuing post-secondary education. Program awards scholarships to transplant candidates, recipients, donors, and their immediate family members each year. Program offers scholarships created to assist students who either have hemophilia or a similar bleeding disorder, or have a family member with a bleeding disorder. Program awards scholarships for children who've lost a parent to breast cancer. $3,000 scholarship to a Navy ROTC midshipman majoring in electrical engineering. "Higher education is so important, and we are thankful to BioMarin for offering this scholarship to further help people living with a rare disease." BioMarin announced its RARE Scholars program on . Provides scholarships to veterans or spouses of disabled veterans who have served in the United States military, including the Reserves and National Guard pursuing higher education. Program awards an educational scholarships to a student who lives with the ongoing challenges and complexities of hydrocephalus pursuing higher education. Provides scholarships to incoming freshman with type 1 diabetes who are US citizens or permanent residents seeking education at an accredited college, four year university, trade school or technical school. An educational scholarship for the children of military personnel who have been killed or permanently disabled in a combat mission or training accident. While scientific advances continue for many of these diseases, individuals living with such disorders still encounter obstacles in achieving traditional life milestones. Program offers college scholarship to individuals who are living with vision loss or blindness. Program offers annual scholarship to a high school senior accepted into a Learning program at the University of the Ozarks, Arkansas. Bronchiectasis News Today - EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US - August 20th, 2020. Program offers scholarships to individuals who have been affected by mesothelioma. Chronic, Serious or Life Threatening Illnesses. An educational scholarship to full-time undergraduate students at JSU, with a preference to those with a sensory impairment. Scholarship awards from $500-$2000 to subsidy college education for immediate family members of individuals with Alpha-1 and for individuals with Alpha-1 Antitrypsin Deficiency. Program provides a scholarship to undergraduate and graduate college students diagnosed with a heart disease, and enrolled or accepted into an accredited college or university in the US. While scientific advances continue for many of these diseases, individuals living with such disorders still encounter obstacles in achieving traditional life milestones. Applicants of all races, ethnicities, genders, and sexual orientations are encouraged to apply. Chronic, Serious or Life Threatening Illnesses, Chronic, Serious, or Life Threatening Illnesses in Children. The information in this site does not constitute legal advice. Program provides financial assistance toward higher education for exceptional students living with cystic fibrosis. 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